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Lebers Hereditary Optic Neuropathy  causes sudden, severe, painless loss of central vision, usually first in one eye, then within a few months in the other

What is LHON?

Through the Perspective of Those Affected

Discover How You Can Support

Bringing Visibility


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Lost Vision at 16

LHON Collective is a global initiative dedicated to accelerating progess toward a cure for Leber Hereditary Optic Neuropathy (LHON) while improving the lives of people living with LHON.

Our Mission


Engage with the LHON Community

Join us in the discovery for prevention, support and a cure for Leber Hereditary Optic Neuropathy (LHON). Your generosity has the power to make a lasting impact on the lives of those impacted by LHON. With a variety of giving options, you can choose the way that resonates most with you and helps advance research, treatments, and support for LHON patients worldwide.

Ways To Give

  • Institutions

  • Individuals

  • Foundations

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Explore How We Support You


Get Connected with the LHON Community

Stay Informed with the Latest Updates from the LHON Community. Explore Our Facebook Group, Event Calendar, Scientific Research and Updates.

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Discover Our Carefully Curated Rare Disease Resource and Education Library

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Join the Cause. Sign up for our mailing list.

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Engage with Us!

Let’s Support the LHON Community

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